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Fantastic! So helpful to those of us with cancer!

My exams are all perfect...just igm at 900...but I feel bad...but there s no reason for treating..apparently! I'm very discouraged cause daily dizzyness !

Anyone hear of WM with elevated IGG, but normal IGM? After treatment for classic WM and six years in remission, mine came back mutated.

❤your Yoga!

So relaxing and feel the vibrations!

As a WM patient, I found your video very informative. I am now going to review my diet, which is pretty good, thanks to my very supportive wife.

Forse...unAngelo Salvatore...

I'm tough and this has been a nightmare. Obtaining healthcare is the worst part. Doctors do not and don't document your symptoms or put the wrong thing or recently totally fabricated a diagnostic which was provenly impossible. They get paid anyway.

❤...

Much appreciation for the informative, encouraging panel discussion.

I can't find much info on WM with normal IgM but elevated IgG. Any suggestions?

Is treatment any different for WM with elevated IGGs?

My husband just got diagnosed with WM.

Very few doctors know even about non-hodgkins lymphoma. I have to advocate for everything. I'm waiting months for iron infusion because I'm not absorbing it. It's too much to have to advocate while battling it ...the fatigue, bone pain. constant respiratory issues. Even when my daughter goes with me, questions about a plan of treatment and failure to document symptoms leaves you abandoned. I can not get through to the cancer place and end up having to go in person to refill doxycycline. Still can't find out about iron infusion status because no one answers the phone. It's no wonder you die of cancer in America.

Dr. Ansell recommends asking questions but he fails to realize that, after receiving the bombshell of the diagnosis, you have no idea what questions to ask or even who to ask. Four years later, I am still asking questions and have come to the conclusion that some hematologists don't have good answers.

I’ve read that sugar feeds cancer. Can diet and lifestyle changes starve the cancer cells and kill it?

Is bloating a symptom of WM?

Glad to see you Sharon, I was a bit worried when I saw no evidence of activity on your channel.

Thank you for posting this very helpful video, and thank you so much for your important work!

I needed to hear this today ❤ I'm 32 and just had a good long cry because I'm in the throws of getting diagnosed. Now I'm gonna gather myself together and get a battle plan in place.

Thank you to both doctors for taking the time to answer all the questions we didn't get to during the Ask The Doctor session. Excellent answers. It was incredibly kind of you to take your own time to these important questions. We are so lucky to have caring doctors like you to help WM patients everywhere!

This makes feel better. I really don't want to leave the peacefulness

Thank you so much Ann Grace. I really needed this today.

None of the slides the doctors are speaking about are visible in this recording.

I can relate and could even add some more bizarre symptoms. Thank you, Dr. Ansell!

If you are going to use a Zoom background you should have a green screen behind you.

wow so empowering

Thank you! Im sending those videos to my grandmother and she loves it so much 😍

So glad to be able to watch this on UA-cam. Thank you for

I have been living with this disease for 3 years going in 4. As well as lung cancer. Had my lower left lobe of my left lung removed three year's ago. And it came back just did a very low amount of radiation. And i find out this month if it's gone. I have lived a wonderful life. So no complaints there.

I had WM treated with chemo in 2016. It came back about seven years later in mutated form featuring elevated (5600) IGG but only slightly elevated IGM levels. FYI

With very little effort the audio disturbance could have been removed from the audio track.

Amazing

Wow, lots of background noise.

I found this "debate" most informative and I don't really mind the light-hearted presentation. Thank you, Dr. Mateus and also D. Ansell.

Thank you□□□

Is it unusual to be in remission with regular WM for 7 years, then have it come back with normal IgMs, but IgGs of 5600?

What an incredible conference! And such a valuable research for Waldenstrom's macroglobulinemia (WM) patients globally. Although WM is a rate disease, with the IWMF, no one is ever alone.

really childish format. i lost some respect for the participants. waldenstrom is not a joke.

Very relaxing, enjoyed the video....Ralph